Saturday, June 21, 2014

The Longest Day

Welcome Summer!  It is really hot here in the south already so I hope it is not an indication of what we have to look forward to all summer long.  Last year, about this time I was lamenting about running in the Peachtree Road Race (largest 10K in the country). This year -- I'm not running or walking -- just watching.  My son and daughter-in-law are going to be running again and I am just going to watch them go by! I do have an excuse this year, a few weeks ago I had my left knee replaced.  Three years ago I had my right one replaced and it was time for the left one to follow the same surgery.  I forgot a lot about what it was like, but my physical therapy is kicking into high gear and it is kicking me in the butt!  I don't remember it hurting like that before but it probably did.  Anyway, in a couple of months I will be good as new (well maybe not quite true) but will be much better off than I was a month or so ago. 

Today is "The Longest Day" as it is the summer solstice. However, you may have also seen a little publicity about Alzheimer's Longest Day.  Today, many groups and organizations are helping to raise money for Alzheimer's by doing an activity all day.  For instance, there is a group here in Athens that is playing bridge all day and raising money.  Others are running, sailing, playing scrabble, walking, playing basketball, etc. to help raise awareness and much needed funds for research.  Thanks to all of those that are participating this year.  I hope next year, I can organize some of my friends and we can play Pickleball all day long!

Sunday, May 25, 2014

Parenting

I am sure I have heard every parent say at one time or another "it's not easy being a parent". when do we ever stop taking responsibility for our children? I know that we can't be responsible for everything they do and certainly when they are adults it is hard to bear that burden.  But lately, I have been feeling bad about some things my son has or has not done, and while he is an adult, I feel bad as a parent, because I didn't raise him that way.  I didn't teach him some of his behavior but it had to come from his upbringing right? My son is not a bad person by any stretch of the imagination, and I am very proud of what he has made of himself, but I am disappointed in some of the ways he has dealt with some things and I feel responsible because I didn't do a good enough job in teaching him. I am sure that some of these things are trivial to others, and the way young people do things these days are totally different than the way we would have done something at that age, but it makes me stop and think about parenting and how little things really can make a difference.

Wednesday, May 07, 2014

Chicken Soup


Many of you have purchased this book and I appreciate it!  All royalties for this book are going to the Alzheimer's Association.  Since its release on April 22nd, the book rose to number 16 on Amazon's book list.  In fact, Amazon ran out of books and the book has been sent for a second printing already.  I have heard from many of you about some of the stories in the book.  I haven't made it all the way through the book yet, but I was surprised at how much I learned from the book.  One lady emailed me that she bought 10 copies of it.  It can also be found at Barnes and Noble, and someone also told me they downloaded it as an e-book, but I haven't checked that out for myself yet.  I was honored to be one of the many people to be able to share their story in this book.  Thanks to all those that put it together.  If you like the book, please let me know.  I would love to hear from you.  Check with your local Alzheimer's Associations, too, as some may have book signings or readings where you can get your copy.

Tuesday, April 29, 2014

It's been awhile

I know I haven't posted in awhile.  Thoughts not in the right place to get down on paper.

This weekend our son and daughter-in-law paid us a visit. It was so nice to have them here -- I'm always a little sad when they leave. I know that sounds pathetic, but I miss them even though they only live about 75 miles away. They are busy. They work a lot and they have their own lives so we hate to intrude into their time.  But I do miss them nonetheless.

I have been going to physical therapy for some back problems.  Yesterday, when I was there I wasn't having a particular day and I found myself having a problem following directions.  It was kind of like when I have a problem making change -- my brain knows what to do, I just can't physically do it.  So, when the therapist asked me to lie and my back and put my feet flat on the table so my knees were upright I couldn't do it.  I knew what he was telling me to do, I just couldn't do it.  Now the therapist doesn't know of my condition, so he just kind of moved my legs for me.  A couple of other times he asked me to do something and I couldn't figure out what he was telling me to do.  I should have something, but I didn't.  I am sure he thinks I am an idiot because I couldn't do simple tasks.  My husband told me I should have said something -- next trip I will.  I just hate bringing it up if I don't have to -- but perhaps this is one of those "have to" situations. I just feel so stupid.

Friday, April 11, 2014

Washington DC

I just returned from Washington DC from the Alzheimer's Advocacy Forum. It was a great conference, almost 1,000 people there.......all dressed in purple. I will post some photos soon. But, this year, the conference got to me. really got to me.....it was way too much for me. By the time we got to the airport to come home I literally didn't know if I was coming or going. had a meltdown at the airport and on the plane. glad Ralph was with me, because I am not sure what I would have done if he hadn't been there.  It was a long week -- too overwhelming.  More soon.

Monday, March 24, 2014

Georgia State Plan

I have written in the past about the state of Georgia working on a state plan to address Alzheimer's.  I am happy to say that the legislature passed the plan in this last session and we should see the results of the work of the committees soon.  Thanks to all that worked on that plan and I know it will be a valuable tool moving forward.

I also wrote a few weeks ago about the "Chicken Soup for the Soul, Living with Alzheimer's and Other Dementias" a few weeks ago.  Today I received an advance copy of the book and if you are dealing with Alzheimer's in your family, I highly recommend the book.  I haven't been able to read all the 101 stories but they all deal with caregiving, coping and compassion.  You will definitely learn something from these stories.  Thanks to all who put this together. It hits book stores mid-April. You may even recognize a few of the authors of some of the articles.

Lots of new Facts and Figures

Last week, the Alzheimer's Association released their new "Facts and Figures" regarding Alzheimer's.  It is an interesting read and re-defines what Alzheimer's means to women -- here is an article from USA Today that gives a good recap of what was in the report --http://www.usatoday.com/story/news/nation/2014/03/19/alzheimers-disease-caregiving/6566179/

For the whole report, you can log onto www.alz.org.

If a few short weeks I'll be heading to Washington DC for the Annual Advocacy Forum -- talking with Senators and Representatives and their staff -- hoping to not only increase awareness for Alzheimer's but increase funding for a cure for this disease. The numbers in the report are staggering and we have to fight harder than ever to get the help we need.

Friday, March 07, 2014

We Back Pat

Over the last couple of days, I have been at the SEC women's basketball tournament.  Today, players were wearing "We Back Pat" thirsts over their jerseys in honor of Pat Summitt and her foundation to fight Alzheimer's.  I was not having a particularly good day, but several people told me they wanted We Back Kris shirts. how sweet is that. it didn't make my day go much better, but I felt loved.....thank you!

Wednesday, March 05, 2014

Too tell or not to tell ....... Part 2

A while back I posted about the internal debate I have in my head lots of times about whether to share with people that I have Alzheimer's. It isn't something that usually comes up in conversation obviously.  Many times I fear saying something because I am afraid that people will treat me differently -- which if you have been reading my blog for awhile, you will know that is usually the case.  So, more times than not, I don't say anything.

About five months ago I started playing Pickleball a few times a week.  At times, the noise got to be a little too much, so I resorted to putting my earplugs in.  Then the distraction from other people when they were not playing bothered me, so I realized that if I stay on a certain side of the court I do better -- one without as many distractions.  Is this fair? I don't know if it is or not, but because of these things I have told a few people about my disease, partly in hopes they would then realize I was not trying to cheat by being on a certain side of the net.  I have been so pleased with the people that I play with -- they only don't treat me any differently, but now watch out for me on the court and never ask me to play on the other side of the net.  I love these people -- I feel like I am really "normal" around them!

Friday, February 21, 2014

Coming to A Bookstore

near you in April